Matthew's Glasses

Well, Matthew got his glasses. Amazingly, he put them on and hasn't messed with them. He is adjusting really well and looks pretty handsome too. Expensive, YES...but worth it if he can see better. We are so proud of him.

Last day of Soccer...

Well, I would have to say that Sara enjoyed soccer. Highlights would have to be her kicking the dirt, picking the flowers and the grass, watching her teammates run after the ball and pointing things out in the sky! It was hilarious.

Actually, she did really well for being the smallest one on the team and she of course was not the only one oblivious at times to what was going on. She dribbled the ball well and had a great time. She even got to play with her friends Jacob and Parker.

I'm sure, we will do it all over again next year!

Nostalgia

As most of you know, my mother is from Colombia and most of her side of the family still reside there. I miss them all horribly and wish I could go back more often. Now with Matthew and his lung disorder, I'm not sure when we'll go back...we'd have to arrange for oxygen when we get there and he'd have to wear it 24/7 because of the high elevation. Not sure I'm ready for all that yet. I guess we'll just have to take it one step at a time.

Elsita (my Aunt) and Jenny (my cousin)...

Les extrano mucho!

Newest Member of the Family

This is the newest member of our extended Family.Ian F. Cardenas

Born July 10, 2008

Parents are Edwin and Morgan Cardenas

Matthew Update

Ok, so Matthew had an Opthamology appointment this morning to check his eyes because of prolonged steroid use. Good news is that there is no sign of glaucoma or cataract; which we really didn't expect; however, we did find out that he needs glasses (I guess I should be ok with that, but it's just one more thing to have to add to his already stressful life...

Secondly, we met Dr. Kahl (GI doc). He is wonderful by the way! Matthew hasn't gained any weight since the last time we were in Cincinnati (still at 23 lb.s for a 28 month old)...like way way way off the chart. Anyway, Matthew has DGE so his food does not pass quickly through his body, which gives him a full feeling. So, our main concern was that they were going to recommend the G tube and then we'd have problems because of too much stuff in his tummy unable to pass. Well our concern was valid. They are now doing a new procedure which involves opening the lower valve with a balloon and then injecting botox to relax the muscle; the balloon comes out but the opening remains relaxed enough to let food pass better through the system. It's done as an endoscopy procedure. In and out...supposedly no side effects. It lasts about 4 months, but their hope is that it gets these kids on the chart and pass the hump so that they don't need to rely on GJ tubes. No gaurantees obviously, but so far 9 out of the 10 kids have had good results. We are encouraged by this option.