The New Year

Ok, so a New Year has begun and though our kids have slight colds right now, things are so much better than they were at this time last year. We now know exactly what Matthew has, we are dealing with it well. He is no longer having issues with the delayed gastric emptying and has been weaned off almost all the meds. His sensory issues from the steroids and albuterol syrup are gone. His glasses corrected his wincing (which we thought was reflux), and his g-tube is helping tremendously with his weight. He is happy, energetic, and recuperates a lot faster with colds and common illnesses! He is in school now and is doing well with speech therapy! This year we are definately having a Birthday party for him; as we did not last year because of doctors appointments and just the muck of life.

Sara is so beautiful. Her curly hair definately takes over her whole self; however she is so refined and poised with it pulled back and cute as a button when she has it in piggy-tails. She is smart and so girly. She is taking gymnastics and ballet. She flitters around the house on her tippy toes and loves her princess dresses. She thrives in school and is very into crafts and being outside! She love her brother and has such a giving heart.

At home we are dealing with sibling rivalry, refusals to nap and occasional tantrums...and yet, we are truly blessed by it all. If you were to have asked a year ago, we would have said that we would take the behavioral problems over the not knowing of an illness. Oh the tears we have shed and the heartache of wondering if what we were doing was right.

We have walked on many stepping stones this past year and we find ourselves now in place of joyful chaos! Thanks to all of you for walking with us and sharing in our journey!