Matthew Update

So today we drove once again to Cincinnati to see Dr. Young for a re-check. She was very happy with Matthew's progress. He now weighs 29.26 and is growing steadily on the chart and on a curve...YEA! The only changes are to reduce his pulmicort to once a day and to get his annual Echo. Otherwise, keep doing what we're doing and make sure we all get our flu shot.

On another note, we were bumbed we didn't get to go to the chILD conference this past weekend, but Dr. Young talked about some key points one of which is that more and more evidence is pointing to NEHI being a genetic thing. So we may be able to participate in a study at some point which may include some DNA testing. Should be interesting.

We also stopped and got his glasses readjusted and ear band replaced. We're supposed to be patching his left eye, but we've not been very consistent and now trying to get Matthew to start patching again for his amblyopia has been almost impossible. But, we can't complain; he's such a trooper and has been very cooperative with everything else. All-in-all, I'd say today was a great day.