Matthew Update

So, last Wednesday, the 15th of October, we drove back to Cincinnati for Matthew's re-check. Overall, it looks like Matthew is doing better; however, his weight was the main topic. Matthew gained like 7oz's in 4 months; very disappointing to say the least; and since his gastric emptying scan came back normal recently, the procedure we were going to have done is no longer an option. So today, we drove to Cincinnati again for the feeding team to evaluate his eating. They wanted to make sure he didn't have any trouble chewing, swallowing, gagging, aspirating, etc...and of course, he did awesome! Unfortunately, since he was sick last week, he also lost weight...again, very disappointing!!! It makes you feel COMPLETELY HELPLESS AND DEFEATED as a parent! He just can't keep up with all the calories he is burning from his breathing hard. I wish I could give him some of my own fat.

So, although we were reassured that we were doing very well with what he was eating at home, they asked us to try a few other things and if we didn't see any gain within 4 to 6 weeks, a g-tube would be necessary. We are going to pray and do our best, but we have finally come to terms with the fact that the g-tube may be the best thing for him.

Have I mentioned that Cincinnati Children's Hospital is fantastic. They never cease to impress me. It's a long drive but well worth it.